ntuc
Joined: 13 Jan 2008
Posted: Thu Jun 19, 2008 9:57 am
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Post subject: Follow-up of My Own Healing Experience
Follow-up of My Own Healing Experience From Tardive Dyskinesia-induced Non-stop Eyelid-twitching
In fact most of the neurology-related disorders nowadays are closely connected to the side effects of modern medications especially the Atypical Antipsychotics that carry the side effects of Extrapyramidal Symptoms (EPS), Tardive Dyskinesia (TD) etc that would potentially and eventually disturb the normal functioning of the dopamine receptors (one of the main neurotransmitters / key elements of neurons (nerve cells) in our nervous system essential for the control of human body motions) such as blocking them etc (in carrying out their medical mechanisms to cure certain other sicknesses and unfortunately is also one of the unavoidable side effects of such medications). Next, such a situation would then lead to bodily chemical imbalances and then potential interruptions to the "message sending, conveying and relaying" neuron operations between the human brain and any parts of the human body that would in turn trigger off a variety of largely uncontrollable involuntary and purposeless movement disorders on any parts of our body that are substantially beyond control of the ones suffering from them.
Next, no matter how sophisticated the modern drugs are being invented and developed, especially the second-generation antipsychotics, such a potential side effect remains inherent in such medications that carry the side effects of antagonizing the dopamine receptors. Even though the possibility of manifestation of such neuromuscular symptoms may be very small or even negligible as proven by the established scientific research, other experimental and clinical verifications, it would still depend on such other factors as the different physical conditions of the users of such drugs, other unexpected possible allergy cases etc.
All in all, it would be the amount of medical attention and professional care of the medical personnel dealing with the specific cases of their patients and dispensing the drugs with such dopamine-disturbing side effects that would be primarily essential to ensure the non-occurrence of such disorders or minimize the risk of getting such disastrous and undesired neuromuscular side effects.
Unfortunately, based on my own personal experience of seeking treatment for such neurological Tardive Dyskinesia-induced Hemifacial Spasm disorders (abnormal involuntary eyelid twitching), most of the related medical specialists simply do not reveal this underlying truth about my actual medical conditions to me.
For your further information, I used to work as a business executive with a promising future not until I suffered from the depression sicknness due to overwhelming work-related pressure and then such Tardive Dyskinesia-induced abnormal eyelid twitching sickness that eventually made me force to quit my job and stop working for more than half a year seeking repeated and numerous treatments for it. And surprisingly, most of the normal specialists just avoided, if not failed to associate my eyelid twitching sickness with the antipsychotic drugs that I had been taking all these while, so did the psychiatrist dispensing such medications to me. And in fact, he just expected and insisted me to continue taking them even when observing that such Tardive Dyskinesia side effects of Hemifacial Spasms were manifesting more and more obviously to him each time I paid visit to his practice for a medical follow-up and to get the same medications from him. Disappointingly, when I eventually questioned him about my abnormally rapid eyelid twitching sickness, he just said that "since I'm not an eye doctor, I naturally wouldn't know the cause of such sickness' . And then he just referred me to another eye doctor of his choice who diagnosed it as other symptoms like dry eyes, bacteria infections etc.
Later on, I just found out that there were quite a number of people who also suffered from such medication side effects of Extrapyramidal Symptoms, Tardive Dyskinesia etc, especially those working adults who were not so well-to-do and at the same time had a family to support and other miscellaneous financial commitments to bear were actually almost in the same boat as me and their lives were nearly ruined in the end together with the ones closely dependent on them. Saddeningly, they did not have the slightest idea of what was actually going on to them due to the negligences and deliberate concealments of their actual medical conditions by the doctors-in-charge
As for my own personal painful experience, I suffered from the Tardive Dyskinesia-induced abnormally rapid non-stop eyelid twitching that resulted from the dopamine-disturbing side effects of Risperdal drugs that were dispensed to me by the relevant psychiatrist to deal with my depression sickness. The problem was such that, before I got such an abnormally rapid eyelid-twitching sickness the depression sickness itself would merely caused me to lose interest in mixing with other people and to a certain extent made me feel reluctant to go to work sometimes.
Nevertheless, by the time such dopamine-disturbing side effects of Risperdal began to cause me abnormally rapid eyelid twitching, it caused me enormous embarrassments in front of so many other people and subsequently denied me of even the very basic abilities to read, watch tv, drive and carry out other daily and basic routines and then it cost me my job making me out-of-work for about six months. To me, the side effects of Risperdal is more distressing, if not, mentally-anguising than the depression sickness that Risperdal purported to cure in the first place.
Can you guys just imagine what an irony could it be when the drugs that are supposed to cure depression would cause such nearly irreversible sicknesses as Tardive Dyskinesia etc due to their unavoidable side effects that are in reality much more ‘depressing' to the patients than the depression sickness itself.
Next, when such unavoidable side effects become more and more serious and obvious and actually make the persons suffering from it getting more and more depressed, what should they do? Continuing taking such problematic medications for depressions to alleviate their mental sicknesses and so as to make them ‘feel better' for the time being at the expense of getting more and more serious side effects of such other bodily damaging sicknesses from such problematic medications later on ? Then what has exactly happened to these patients ? Would it be warranted to conclude that they have been plunged into such a vicious circle of ‘drug addiction' that would ultimately get thier lives ruined in the end if they were to be instructed by their doctors to continue doing so ?
I am less fortunate enough to come from such a less-developed country to have access only to the outdated drugs with greater hazardous side effects whilst the related users of such defective drugs are mostly less medical-conscious and often over-relying on the misleading advices and instructions of the doctors, only to the detriment of their health and well-being in the end. In fact, regardless of the fact that more and more advanced versions of Botox injections and other sophisticated drugs with lesser side effects meant for the treatment of mental disorders and other related illnesses are invented in U.S and other more advanced European countries from time to time, the so-called specialists in my home country which is less-developed would still insist to dispense and apply the outdated drugs for the treatment of such sicknesses knowingly just to save costs and reap more profits from their custormers. And that is the reason why I tend to get an ever increasing dosage of the same older version of Botox injection from the same neurosurgeon time and time again for the treatment of my Tardive Dyskinesia-related abnormal eyelid twitching before I am fortunate enough to finally get it totally cured through acupuncture treatment. For your further information, I actually paid 5000 dollars for each Botox treatment from an expensive private medical center of my home country and I was surprised to know from other U.S and European people over the internet that such Botox treatment would cost them only 500 dollars the most in their own countries. Furthermore, such medical costs are covered by insurance scheme in these modern countries in contrast to my own home country whereby all the medical costs are expected in a non-negotiable way to be paid immediately on cash terms by the ones receiving such treatments from such expensive medical centres and insurance coverage rarely and hardly works down here.
So, In line with my vocation as a part-time social worker for my religious organization, by posting these articles over the internet, I hope that apart from sharing my healing experience from such Tardive Dyskinesia-induced abnormal eyelid twitching, these information would eventually raise the level of self-awareness and self-consciousness about the hazards of Tardive Dyskinesia and Extrapyramidal Symptoms as well as the medications causing such disorders, especially the modern Atypical Antipsychotics meant for the treatment of certain mental disorders so that the intended persons could avoid following in my footsteps of getting such disastrous side effects from these drugs by being more medical-conscious and expecting the medical personnel-in-charge to exercise the necessary due diligence, responsibilities and obligations for their healthcare.
Subsequently, in spite of the fact that the medical personnel in such modern and developed nations as U.S and most of the European countries may, due to the strict professional protocol, exercise a much higher level of medical ethics in dispensing the related medications with such dopamine-disturbing side effects and paying more medical attention in dealing with patients with such neuromuscular disorders (in contrast to the haphazard and arbitrary ways in which such patients are getting treated in my home country which is less-developed), I still feel that the patients themselves should at the same time be more observant in such matters dealing with their health and be wary of the disastrous side effects of such medications. After all, it is eventually their own bodies and health matters that are being at stake, and hence need to be taken care of.
Lastly, I hope that the information provided will be useful to the intended readers and hopefully better medications free of such undesired side effects will be invented in the near future to improve the medical welfare of all mankind. Thank you.
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ntuc
Joined: 13 Jan 2008
Posted: Fri Jul 04, 2008 1:41 pm
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Post subject: Issues of Medical Ethics In Less Developed Nations
Issues of Medical Ethics In Less Developed Nations
In the context of such modern nations as U.S and other developed European nations whereby most of the medical personnel are subject to the strict professional protocol especially in terms of dispensing the medications with potential disastrous side effects to their patients, the medical welfare of this group of people would be greatly ensured in such a case.
Unfortunately, I am just simply one of the many victims of gross negligence of the so-called licensed medical specialists of a less-developed country who care about nothing but the medical fees that I would pay to them in return for such problematic and defective drugs regardless of any bodily damages that these medications have inflicted upon me as visible and readily observable by these group of unethical medical professionals each time I pay regular visits to their practices for 'regular supplies' of such problematic medications.
Next, when such group of related patients in my home country start to have doubts about the disastrous side effects of the antipsychotic medications dispensed regularily to them and actually question the related 'medical experts' about such issues, invariably almost all of these 'professionals' will try to shirk their responsibilities by keeping them in the dark by saying directly 'I don't know what has exactly happened to you as I'm just a psychiatrist and not an eye doctor, chiropractic doctor etc' and they would then refer the related patients to other medical specialists of other fields who would in turn give other misleading diagnosis about their actual neurological / neuromuscular sicknesses to these poor patients (even when those problematic medications are presented face-to-face directly to them in their own practices). All in all, there seems to be a 'tacit conspiracy' between these medical personnel in my home country to work against the medical welfare of these poor patients and to put it bluntly, they are just paying these doctors for those seemingly 'logical and plausible lies' about the actual medical conditions they are having exactly. Next, to further worsen such a pathetic situation, my home country tends to become a 'dumping ground' all the while for decades for the outdated medications with greater unwanted side effects from such modern nations as U.S and other advanced European countries.
Frankly speaking, as a part-time social worker working for the welfare of these poor group of people and a former victim myself who has suffered painfully like them, I hope that by airing these facts and my views through the internet, such a saddening scenario will be exposed to more and more benevolent individuals and such an exploitation would come to an end one day. Thank you.
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ntuc
Joined: 13 Jan 2008
Posted: Wed Jul 30, 2008 5:29 am
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Post subject: Brief Summary / My Personal Opinions
Brief Summary / My Personal Opinions
As a brief summary for the prior posts made above, I get this abnormally rapid non-stop eyelid twitching in the very first place due to the dopamine-disturbing side effect of Risperdal that, together with other related medications, which account for most of the so-called 'undiagnosed' neurological movement and neuromuscular disorders.
In my case, since it is the 'Risperdal toxin' which accumulates mostly around my eye nerves that cause all the abnormal, involuntary, uncontrollable, purposeless and non-stop rapid eyelid twitchings. As such, the acupuncture treatment (as mentioned in the prior posts above) administered onto my "He Gu" acupuncture point actually works in a way that it would gradually purge such 'Risperdal toxin' that cause all the 'unexplained' twitchings and spasms' out of the nerves around my eyes and enable me to get totally cured once and for all from this sickness in the end.
Next, such a mechanism about the acupuncture therapy mentioned above is what has been elaborated to me by the acupuncturist who deal with my eyelid twitching sickness. Personally, I feel that such an explanation sounds rather logical and reasonable to me.
In such a connection, I really wonder if the similar acupuncture treatment and mechanism would be applicable and workable too in the case of the non-stop twitchings and spasms for the other parts of human body such as arms, legs etc that are in turn similarly caused by the dopamine-disturbing side effects of certain medications (by applying acupuncture treatment onto the other related acupuncture points to purge the dopamine-disturbing toxins causing such twitchings and spasms out the the related peripheral nerves of the other parts of human body to deal with these neurological movement / neuromuscular disorders).
For further information about such 'hypothesis', please refer to the following weblink (the related post under the "My Personal Views / Note of Caution" ).
http://www.tcmdiscovery.com/bbs/forum_posts.asp?TID=4393
Lastly, I hope that my views / opinions will finally contribute to a further advancement of the medical science in terms of the search and discovery for a conclusive treatment for such medication-induced dopamine-disturbing neurological movement and neuromuscular disorders. Thank you.
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ntuc
Joined: 13 Jan 2008
Posted: Sat Oct 11, 2008 7:39 am
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Post subject: The Sorry Plight of the Chronic Eyelid-twitchers
The Sorry Plight of the Chronic Eyelid-twitchers / Eye-blinkers - Our Experiences
'Actually by the time I got this abnormally Tardive Dyskinesia / medication-induced rapid eyelid-twitching / eye-blinking of countless times in a split second (which is one of its symptoms), the feeling was sort of like I was plunged into a situation between blindness and non-blindness in the sense that I could just vaguely ‘visualize’ the surroundings around me while my eyes were blinking, but getting unable to do anything else, even simple reading, watching tv in a ‘satisfactory’ way, and of course, I totally needed to refrain myself from driving (otherwise I would certainly bump the others or get bumped).
And given the fact that my eyes were just ‘blinking rapidly’ and I did not actually get totally ‘blind’ because of any actual damages to the eyes, I always simply found myself caught in a dilemna in between the options of reconciling myself with such an ‘eye disability’ (such as what the others around me had always advised me to do) and doing something medically effective to deal with it to bring my life back to the former usual days before I got this ‘eye sickness.
To be really frank with you, i just couldn’t help myself most of the times but to have suicidal tendencies each time when I locked myself up in my own room (with the lights all off) and kept on thinking about my hopelessly handicapped situation that denied me from doing actually anything, even all the very basic daily routines. And I also tended to avoid seeing anyone else (so as to avoid all sorts of embarrassments and feelings of inferiority complex on my part associated with my ‘visually incapacitating’ abnormalities in front of other people). So, can you just imagine the pains I had gone through during such an abnormally ‘eye-blinking period' ?
Let me just tell you something, each time me and the others having the similar symptoms get exposed to ‘strong lightings’ of any kind, we would just tend to shed tears uncontrollably apart from just blinking our eyes rapidly whilst at the same time, will get our eyes overstrained - that’s simply one of the obvious symptoms of photophobia associated with rapid eyelid- twitching / eye-blinking. And the same thing will happen when we overstrain our rapidly blinking eyes reading something else such as newspaper articles.
So, may I ask you a question, can you find any pleasures seeing a movie, working with a pc or reading a novel with a pair of tearing and rapidly blinking eyes which would uncontrollably and involuntarily get more and more overstrained (and hence just makes you shed even more tears and blink your eyes more and more rapidly) as you keep on watching the movies / doing the reading ?'
By making the quotations above, I just want to tell you that these are also the similar complaints that tend to be repeated over and over again by the ones both in my real life and those seeking helps from me through emails for their chronic eyelid-twitching / eye-blinking problems (especially the medication-induced ones).
Next, by making these posts, apart from sharing with you guys my healing experience from such a sickness through acupuncture treatment (for which there have been lots of empirically successful cases that I observe in my real life and given as positive feedbacks to me through my email inbox), the other reason that I tend to air my complaints nowadays about such a medication-induced eyelid twitching sickness over the internet is such that there are simply too many people in my home country which is less-developed still suffering from the similar pains that I have gone through before (whilst the number is still on the rise), and saddeningly, in most cases, these 'tragedies' would not have occurred at all in the very first place if the doctors-in-charge are conscientious and ethical enough in the duty of taking care of their medical welfare.
So, when the medications with harmful side effects are getting unscrupulously manipulated and exploited by certain individuals like the consciencelessly avaricious drug manufacturers, expensive private medical center owners, unethical medical personnel etc for their profit-making financial and commercial pursuits, what would be the actual underlying curative values of these medications then under such a circumstance ?
Or put it bluntly, is it justified and warranted to just get such medications labelled as ‘mere poisons’ under such a scenario ?
Lastly, I just hope that this world on the whole will eventually become a better place for anyone to live in with lesser unnecessary human-generated causes of worries and concerns for one's healthcare / well-being. Thank you.
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